Just Squeeze My Hand: A Caregiver's Experience with Frontotemporal Dementia

This is a love story of a twenty-six-year marriage that was extended with a six-year slow death sentence due to the dreaded mental illness, Frontotemporal Dementia. Frontotemporal Dementia affects approximately 50,000-60,000 people (Knop, 2011 cure PSP). Frontotemporal Dementia can start in the forties age group, making it very difficult to diagnose. This story describes the challenges of a caregiver to initially know what the actual diagnosis was because it was a hard disease to diagnose.